Sharon Thomason

Sharon Thomason serves as both Patient Advocate and Director of Education at Help 4 HD International, Inc., where she plays a pivotal role in advancing the organization’s mission to educate the global community about Huntington’s disease (HD) and Juvenile Huntington’s disease (JHD). Her current responsibilities encompass developing and implementing comprehensive educational strategies that leverage multimedia platforms to disseminate credible, accessible information about these complex neurodegenerative disorders. Sharon’s expertise in educational leadership and journalism enables her to craft compelling content that resonates with patients, families, caregivers, and healthcare professionals alike.

A key aspect of her role involves curating and managing content for “The Huntington’s Post,” an influential online newspaper that provides timely updates, personal stories, and expert insights into HD/JHD. Her experience in editing, designing, and publishing educational materials—including three books and multiple brochures—underscores her commitment to resource development and health literacy. Sharon’s leadership in organizing and hosting the annual symposium in 2016, along with ongoing education days, demonstrates her dedication to fostering community engagement and professional collaboration within the HD advocacy network.

Her skills in event planning, social media, and digital communication are instrumental in expanding outreach efforts, raising awareness, and building a supportive network for those affected by HD/JHD. Through her strategic initiatives, Sharon continues to enhance the organization’s impact, ensuring that accurate information and compassionate care remain at the forefront of Help 4 HD International’s mission to improve lives worldwide.