Julia Jenkins
Board Member at California Action Link for Rare Diseases (CAL RARE) | Washington, District of Columbia, United States
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As a dedicated Board Member at California Action Link for Rare Diseases (CAL RARE), Julia Jenkins plays a pivotal role in shaping the landscape of rare disease advocacy in California. With a strong focus on building a cohesive rare disease community, Julia is committed to ensuring that the voices of rare disease patients are not only heard but also integrated into public policy and drug development processes. Her expertise in patient advocacy and public policy allows her to effectively collaborate with individual patients, caregivers, and patient organizations, ensuring that their needs and concerns are at the forefront of CAL RARE's initiatives.
Julia's current projects include spearheading awareness campaigns that educate the general public and key decision-makers about the challenges faced by rare disease patients. By leveraging her skills in communication and organizational development, she has successfully organized events that bring together stakeholders from various sectors, fostering a collaborative environment for sharing resources and best practices. Her experience in legislative relations and fundraising has been instrumental in securing support for CAL RARE's mission, enabling the coalition to expand its outreach and impact.
In addition to her strategic oversight, Julia is passionate about empowering patients and advocates through training and mentorship programs. She believes that by equipping individuals with the tools and knowledge necessary for effective advocacy, CAL RARE can create a more robust and informed community. Julia's commitment to volunteer management ensures that the coalition operates with a strong foundation of dedicated individuals who share her vision of improving the lives of rare disease patients across California and beyond. Through her leadership, CAL RARE continues to be a vital force in the fight for equitable access to treatment and support for those affected by rare diseases.
Board Member at California Action Link for Rare Diseases (CAL RARE) in January 2017 to Present
Advisor at Sick Cells in January 2022 to Present
Executive Director, Global Patient Advocacy at BioCryst Pharmaceuticals, Inc. in January 2023 to January 2024
President of the Board of Directors at EveryLife Foundation for Rare Diseases in January 2021 to January 2024
Executive Director at EveryLife Foundation for Rare Diseases in January 2013 to January 2023
Policy Board Member at National Health Council in January 2021 to January 2023
Steering Committee Member & Co-Chair of the Government & Policy Working Group at Rare Disease Diversity Coalition in January 2020 to January 2023
Secretary Board of Directors at EveryLife Foundation for Rare Diseases in January 2013 to January 2021
Director of Public and Government Relations at EveryLife Foundation for Rare Diseases in January 2009 to January 2013
Associate Political Consultant at The Lew Edwards Group in January 2007 to January 2009
Legislative Director at Public Employees Union Local 1 in January 2006 to January 2007
Intern at U.S. House of Representatives in January 2005 to January 2006
Fundraiser at San Francisco Democratic Party in January 2005 to January 2006
Program Coordinator at Muscular Dystrophy Association in January 2001 to January 2004
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Governmental Affairs
Public Policy
Leadership
Politics
Patient Support
Budget Management
Patient Advocacy
Staff Development
Legislative Advocacy
Government Relations
Organizational Development
Communication
Fundraising
Event Planning
Public Speaking
Grassroots Organizing
Nonprofits
Strategic Communications
Legislative Relations
Policy Analysis
Public Relations
Speech Writing
Lobbying
Public Affairs
Media Relations
Community Outreach
Political Campaigns
Volunteer Management
Nonprofit Organizations
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Discover more about California Action Link for Rare Diseases (CAL RARE)What is Julia Jenkins email address?
Email Julia Jenkins at [email protected] and [email protected]. This email is the most updated Julia Jenkins email found in 2026.
What is Julia Jenkins phone number?
Julia Jenkins phone number is +14152545758 and +15052275900.
How to contact Julia Jenkins?
To contact Julia Jenkins send an email to [email protected] or [email protected]. If you want to call Julia Jenkins try calling on +14152545758 and +15052275900. (updated on October 30, 2024)
What is Julia Jenkins net worth?
Julia Jenkins has an estimated net worth of -$2,499 to $2,499
What company does Julia Jenkins work for?
Julia Jenkins works for California Action Link for Rare Diseases (CAL RARE)
What is Julia Jenkins's role at California Action Link for Rare Diseases (CAL RARE)?
Julia Jenkins is Board Member
What industry does Julia Jenkins work in?
Julia Jenkins works in the Biotechnology Research industry.
Julia Jenkins Email Addresses
Julia Jenkins Phone Numbers
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