Julia Jenkins Email & Phone Number

Julia Jenkins

Board Member at California Action Link for Rare Diseases (CAL RARE) | Washington, District of Columbia, United States

Julia Jenkins Socials
About Julia Jenkins

As a dedicated Board Member at California Action Link for Rare Diseases (CAL RARE), Julia Jenkins plays a pivotal role in shaping the landscape of rare disease advocacy in California. With a strong focus on building a cohesive rare disease community, Julia is committed to ensuring that the voices of rare disease patients are not only heard but also integrated into public policy and drug development processes. Her expertise in patient advocacy and public policy allows her to effectively collaborate with individual patients, caregivers, and patient organizations, ensuring that their needs and concerns are at the forefront of CAL RARE's initiatives.

Julia's current projects include spearheading awareness campaigns that educate the general public and key decision-makers about the challenges faced by rare disease patients. By leveraging her skills in communication and organizational development, she has successfully organized events that bring together stakeholders from various sectors, fostering a collaborative environment for sharing resources and best practices. Her experience in legislative relations and fundraising has been instrumental in securing support for CAL RARE's mission, enabling the coalition to expand its outreach and impact.

In addition to her strategic oversight, Julia is passionate about empowering patients and advocates through training and mentorship programs. She believes that by equipping individuals with the tools and knowledge necessary for effective advocacy, CAL RARE can create a more robust and informed community. Julia's commitment to volunteer management ensures that the coalition operates with a strong foundation of dedicated individuals who share her vision of improving the lives of rare disease patients across California and beyond. Through her leadership, CAL RARE continues to be a vital force in the fight for equitable access to treatment and support for those affected by rare diseases.

Julia Jenkins Work
1 experience icon

Board Member at California Action Link for Rare Diseases (CAL RARE) in January 2017 to Present

2 experience icon

Advisor at Sick Cells in January 2022 to Present

3 experience icon

Executive Director, Global Patient Advocacy at BioCryst Pharmaceuticals, Inc. in January 2023 to January 2024

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Julia Jenkins Skills

Governmental Affairs

Public Policy

Leadership

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About Julia Jenkins's Current Company
California Action Link for Rare Diseases (CAL RARE)

Discover more about California Action Link for Rare Diseases (CAL RARE)
Frequently Asked Questions about Julia Jenkins

What is Julia Jenkins email address?

Email Julia Jenkins at [email protected] and [email protected]. This email is the most updated Julia Jenkins email found in 2026.

What is Julia Jenkins phone number?

Julia Jenkins phone number is +14152545758 and +15052275900.

How to contact Julia Jenkins?

To contact Julia Jenkins send an email to [email protected] or [email protected]. If you want to call Julia Jenkins try calling on +14152545758 and +15052275900. (updated on October 30, 2024)

What is Julia Jenkins net worth?

Julia Jenkins has an estimated net worth of -$2,499 to $2,499

What company does Julia Jenkins work for?

Julia Jenkins works for California Action Link for Rare Diseases (CAL RARE)

What is Julia Jenkins's role at California Action Link for Rare Diseases (CAL RARE)?

Julia Jenkins is Board Member

What industry does Julia Jenkins work in?

Julia Jenkins works in the Biotechnology Research industry.

Julia Jenkins Email Addresses

Email Julia Jenkins at [email protected] and [email protected]. This email is the most updated Julia Jenkins email found in 2026.

Julia Jenkins Phone Numbers

Julia Jenkins phone number is +14152545758 and +15052275900.
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