Sylvia Roozen
Secretary General at International Federation for Spina Bifida and Hydrocephalus | Brussels Metropolitan Area, Belgium
Sylvia Roozen’s Email & Phone Number
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Sylvia Roozen serves as the Secretary General of the International Federation for Spina Bifida and Hydrocephalus, where she leads global health strategy and patient-centered research initiatives focused on health equity and human rights for disabled and marginalized communities. Educated at Maastricht University, she directs a worldwide umbrella non-profit dedicated to improving the quality of life for individuals affected by spina bifida and hydrocephalus while advancing primary prevention efforts. Her leadership aligns the federation’s international member associations under a unified mission to reduce neural tube defect incidence and support affected families across multiple regions.
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Reach out to Sylvia Roozen via personal email with a concise introductory message that explicitly connects your outreach to her ongoing health equity initiatives and primary prevention goals at the International Federation for Spina Bifida and Hydrocephalus.
Secretary General at International Federation for Spina Bifida and Hydrocephalus in June 2020 - Present
Program Manager & Researcher at Maastricht University in January 2014 - December 2021
Selected Assignments at Multiple in January 2017 - January 2019
Research Fellow at Telethon Kids Institute in November 2018 - December 2018
Program Lead at Maastricht UMC+ in January 2016 - December 2018
Visiting Scholar at University of California San Diego in July 2017 - September 2017
Program Lead at FOUNDATION FOR ALCOHOL RELATED RESEARCH in August 2011 - October 2013
Maastricht University, July 2026
Maastricht University, July 2026
UC San Diego, University of California San Diego - Rady Children’s Hospital San Diego, July 2026
The International Federation for Spina Bifida and Hydrocephalus (IF) is the worldwide umbrella organisation (INGO) for Spina Bifida and Hydrocephalus organisations. IF’s mission is to improve the quality of life of people with Spina Bifida and/or Hydrocephalus and their families throughout the world and to reduce the incidence of neural tube defects and Hydrocephalus by primary prevention. Improving the quality of life and primary prevention are the motivation for everything IF undertakes. This is the same for the IF member associations. The most important way to fulfil that mission is to spread knowledge and to encourage contact between parents and persons with Spina Bifida and/or Hydrocephalus. The importance of contact is recognition, not feeling alone or isolated, learning from each other. Parents as well as persons with Spina Bifida and/or Hydrocephalus often mention how important these contacts are. Knowledge is the first essential step towards minimising the effects of impairment. It ensures that people with Spina Bifida and/or Hydrocephalus are full partners in decision making and that carers, professionals and persons with Spina Bifida and/or Hydrocephalus all have access to the latest information. IF’s knowledge comes from its unique global network with 60 member associations worldwide. This network is the IF Knowledge Network, exchanging knowledge, information and examples of good practice at an international level.
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What is Sylvia Roozen email address?
Email Sylvia Roozen at [email protected], [email protected] and [email protected]. This email is the most updated Sylvia Roozen's email found in 2026.
How to contact Sylvia Roozen?
To contact Sylvia Roozen send an email to [email protected], [email protected] or [email protected]. (updated on November 11, 2025)
What company does Sylvia Roozen work for?
Sylvia Roozen works for International Federation for Spina Bifida and Hydrocephalus.
What is Sylvia Roozen's role at International Federation for Spina Bifida and Hydrocephalus?
Sylvia Roozen is Secretary General
What industry does Sylvia Roozen work in?
Sylvia Roozen works in the Non-profit Organization Management industry.
