About Myhre Syndrome Foundation

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Website
Employees
Employees
1-10 employees View all
Industry
Industry
Fundraising
Location
Location
25 Creekwood Circle, Richardson, Texas 75080, US
Description
Information
Myhre Syndrome is a rare genetic disease first described by Dr. Selma A. Myhre, an American pediatrician, in 1981. There are less than 200 confirmed cases of Myhre syndrome worldwide and true numbers are unknown. We hear of new cases each year as awareness grows. Myhre Syndrome Foundation is a patient advocacy organization dedicated to providing hope and improving the lives of those impacted by Myhre syndrome. We foster collaboration among all relevant stakeholders to build a strong, global community in order to advance research, as well as support, educate and advocate for those impacted by Myhre syndrome. (MSF is a registered 501c(3) charity)

Myhre Syndrome Foundation Alternatives

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Frequently Asked Questions about Myhre Syndrome Foundation

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