Marfan syndrome is a life-threatening genetic disorder of the body's connective tissue. It affects the heart and blood vessels, the bones and the eyes. Knowing the signs is the key to early and accurate diagnosis and life-saving treatment.
The Marfan Foundation creates a brighter future for everyone affected by Marfan syndrome and related disorders. We work tirelessly to advance research, serve as a resource for families and healthcare providers, and raise public awareness. We will not rest until we have achieved victory.
Learn more and get involved at Marfan.org.
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11-50 employees
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Non-profit Organization Management
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22 Manhasset Ave, Port Washington, New York 11050, US
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1981
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Carolyn Levering is the CEO of The Marfan Foundation. Or you may call 5166972975
The decision makers in National Marfan Foundation are Judy Gibaldi, Maggie Hogan, Rob Durkee, etc. Click to Find National Marfan Foundation decision makers emails.
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